I haven't talked much about my infusions, but I had a problem with the Benadryl (given because of a high risk of allergic reaction) burning my veins. Yes its as
Friday I wasn't given Benadryl at all. Not sure if it was because of my problems or she just forgot, but I thought it was odd that I was able to read my book during the infusion. Normally I'm so loopy headed I can just hold my head back and wait it out.
Then, on the drive to Ohio I didn't fall asleep. At all. Normally (non drugged) I sleep in the car. It doesn't matter what time of day or how long of a journey it is. I get narcosleepy. Add to that the fact that I've been going to bed at 6 and 6:30 on infusion days and I should have seen the red flag waving.
I didn't see it until we arrived at Jay's parents and took the bandage/wrap off.
My hand was swollen.
Totally not cool.
That pretty much set the tone for the rest of the week. Instead of riding to my rescue and getting me some OTC Benadryl from an all night pharmacy, the Mutant told me not to over react and just go to bed.
I woke up with my hand hurting and still swollen. Before lunch we stopped and got me some Benadryl, and I took the dosage for a 6 year old child, hoping that it would incapacitate me for the rest of the day. Add to that the scorching 90+ degree heat and the sun beaming on the asphalt at the zoo, and I was looking for a bench to set on at every moment.
I've taken a full dose every evening since and most of the swelling has gone down, but its still a little puffy and hurts. I'm sick of this. I'm ready for it to be over. I'm tired of my veins hurting. I'm tired of the low energy levels. I thought this was supposed to fix me.
My mom assures me I'm probably just tired from the allergic reaction and my body trying to fight it off. Well that and PMS.
I'm glad to be home. The pretense, superficiality, and love of money that permeates Yuppiville is just too much for me. Not to say that I'm above all that. More accurately, I'm below it. Not good enough to fit in.
I'll make it through this week. I always do. And on Friday I'll visit my Hematologist to get my new game plan, to see if the infusions worked, to get the results of my blood work.
Next week will be better.