I haven't talked much about my infusions, but I had a problem with the Benadryl (given because of a high risk of allergic reaction) burning my veins. Yes its as
Friday I wasn't given Benadryl at all. Not sure if it was because of my problems or she just forgot, but I thought it was odd that I was able to read my book during the infusion. Normally I'm so loopy headed I can just hold my head back and wait it out.
Then, on the drive to Ohio I didn't fall asleep. At all. Normally (non drugged) I sleep in the car. It doesn't matter what time of day or how long of a journey it is. I get narcosleepy. Add to that the fact that I've been going to bed at 6 and 6:30 on infusion days and I should have seen the red flag waving.
I didn't see it until we arrived at Jay's parents and took the bandage/wrap off.
My hand was swollen.
Totally not cool.
That pretty much set the tone for the rest of the week. Instead of riding to my rescue and getting me some OTC Benadryl from an all night pharmacy, the Mutant told me not to over react and just go to bed.
I woke up with my hand hurting and still swollen. Before lunch we stopped and got me some Benadryl, and I took the dosage for a 6 year old child, hoping that it would incapacitate me for the rest of the day. Add to that the scorching 90+ degree heat and the sun beaming on the asphalt at the zoo, and I was looking for a bench to set on at every moment.
I've taken a full dose every evening since and most of the swelling has gone down, but its still a little puffy and hurts. I'm sick of this. I'm ready for it to be over. I'm tired of my veins hurting. I'm tired of the low energy levels. I thought this was supposed to fix me.
My mom assures me I'm probably just tired from the allergic reaction and my body trying to fight it off. Well that and PMS.
I'm glad to be home. The pretense, superficiality, and love of money that permeates Yuppiville is just too much for me. Not to say that I'm above all that. More accurately, I'm below it. Not good enough to fit in.
I'll make it through this week. I always do. And on Friday I'll visit my Hematologist to get my new game plan, to see if the infusions worked, to get the results of my blood work.
Next week will be better.
I like the new look around here, Brooke!
ReplyDeleteSorry it was a bad weekend. I truly hope the infusions have helped and you're able to get back to "normal", whatever that might be. Hope you're feeling better soon.
And, yes, next week WILL be better! Positive thinking, girlie!
I hope they figure out a new game plan too...without any allergic reactions. I bet it feels good to be home.
ReplyDeleteGirl, you're a better woman that I am. I would have slugged him.
ReplyDeleteawe sorry it was a miserable weekend!! that totally stinks. :( what did they decide abt your lead poisoning option?
ReplyDeleteOh, my dear Brooke. ((hugs)) to you. PMS mixed with drugs and reactions and snarky-ass husbands are not a good combo on any day. I pray you find peace within to help you love you as much as all us hookers love you. You deserve that. I'm interested to here what your Heme tells you. More ((hugs)).
ReplyDeleteThis week WILL be better. Just think -- the bad HAS to be over, lol!
ReplyDeleteYou should have made fun of all the hoity-toiteness. I would have. I can't help but make smart-aleck comments. Sometimes they come out TOO smart-alecky. But I'm not going to work on it.
Blechhhh I feel like I live in Yuppiville sometimes. This town is full of people who would make you absolutely barf.
ReplyDeleteYeah, this week's gonna be better FO SHO! :)
That sucks about the infusion!! I hope you have a better week :)
ReplyDeleteI am so sorry....I really am.
ReplyDeleteSorry you had a crummy week - praying next one is better!
ReplyDeleteOy. Mutants. (*sigh*)
ReplyDeleteI know that sometimes we get a little tense when we visit family (mine or my husbands), even though we love them and want to see them. It's complicated. The stress can make both of us prickly...or gimpy: when we saw both of my divorced parents in the same weekend last year, I woke up all puffed up around my left eye. He tends to get leg/back spasms during travel. We're quite a pair!
And ah, yes, Yuppiville. There are elements of that in my area. One does become desensitized to it after awhile, although I sometimes can't help feeling a pang of inadequacy when I take my kids to some of their play dates...or at least wonder what the "fancy house" people think when they bring their kids to *our* house, which is tiny and old (not in a lovely antique way) with dog-loved-to-death carpet. But it's cozy, we have good neighbors and a gorgeous view, and I so appreciate that we're not living beyond our means, even if it means we're about 8 wheels short of a trailer. ;-)
Anyway, glad you're home, and I'm hoping your doctor appointment goes well. Holding good thoughts and prayers for you!
Ugh! I'm sorry about the allergic reaction! So not fun. & your weekend in Yuppiville doesn't sound so great either. Maybe the only reason J started to say fat was cuz you said it? Maybe?
ReplyDeleteaw, so sorry to hear about your weekend :(
ReplyDeletegreat thing is you're staying positive and your days can only get better! prayers w/you!
Sorry your injection and PMS have both reared their ugly heads. Hopefully the infusions are completely done and you can ride out this reaction. As for PMS, unfortunately you are stuck with that for awhile I'm afraid.
ReplyDeleteYuppiville does not sound like a place I'd like to visit. I've always thought I'd love to live in Miami, but realize my alabaster (as in glow in the dark) white skin and flab would not make the beaches beautiful. We all have our issues, there is no doubt about that, but hopefully you will realize that we all love you and hope one day you will also realize how fabulous you are. Think on the bright side, maybe J was going to say PHat, not Fat :) ((hugs)) my friend.
You have reason to be in a mood! I'm sorry, friend!
ReplyDeleteAnd I also love the new look here! Very nice!
:-(
ReplyDeletebut your blog is all pretty and fresh!
Hang in there Brooke... I am guessing that they did want to try going without because of your reaction to the benadryl. Have they discussed doing oral benadryl instead of IV? That would seem to me a good alternative. I have several pts that have the "reverse" reaction to benadryl and get wired and hyper with IV benadryl, so we give a lower than normal dose of oral. The other thing you may ask about is using hydroxyzine (vistaril) (similar to benadryl) IV which can be much better tolerated.
ReplyDeleteHang in there... I am not very familiar with giving iron by infusion, but it does make sense that it would take a bit of time for you to feel a difference. Make sure to discuss this with them, to make sure that it isn't out of the ordinary.
Don't hesitate to email me if you have any questions or need to vent. tiffanyzook@gmail.com